Outputs
Papers
| Randomised controlled trial to measure effectiveness and cost-effectiveness of a digital social intervention promoted by primary care clinicians to adults with asthma to improve asthma control: protocol
11 Sept. 2025 - BMJ Open
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27 Sept. 2024 J Med Internet Res
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27 Sept. 2024 European Journal of General Practice |
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24 May 2024 JMIR Formative Research |
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14 Aug 2023 J Med Internet Res |
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11 July 2023 BMJ Open |
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25 Mar 2023 Research Involvement and Engagement |
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17 May 2022 JMIR Formative Research |
Presentations / Abstracts
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How engagement with an online community may affect self-management of anxiety in people with asthma Presentation at the Society for Academic Primary Care (SAPC) Regional Meeting, Madingley, January 2025 |
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Understanding superusers’ and regular users’ engagement in UK Respiratory Online Health Communities and the impact of their interaction on sentiment: A BioBERT Perspective. Presentation at the Primary Care Respiratory Society (PCRS) Respiratory Conference, Telford, Sept 2024 |
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Self-management behavioural change as a result of engagement with online peer support: Insights from a qualitative analysis of a UK asthma online. Presentation at the Society for Academic Primary Care Annual Scientific Meeting (SAPC ASM), Bristol, July 2024 |
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Moderators’ experiences of safety and effectiveness of patients’ engagement in the ALUK asthma OHC. Presentation at the monthly AUKCAR meeting, London, June 2024 |
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Learning from the AD HOC feasibility study. Presentation at the monthly AUKCAR meeting, London, May 2024 |
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Understanding superusers’ and regular users’ engagement in UK Respiratory Online Health Communities and the impact of their interaction on sentiment: A BioBERT Perspective. Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Reading, April 2024 |
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Behaviour change following engagement with an online asthma community: Insights from a qualitative analysis. Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Reading, April 2024 |
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Optimising opportunities for PPI involvement in Research. Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Reading, April 2024 |
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Optimising the safety and effectiveness of the Asthma + Lung UK (ALUK) Asthma Online Health Community (OHC): in-depth interviews with moderators. Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Swansea, April 2023 |
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How might an influx of new users, resulting from the AD HOC trial, impact the Asthma + Lung UK (ALUK) Asthma Online Health Community (OHC)? Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Swansea, April 2023 |
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Co-designing a digital social intervention by primary care clinicians to encourage patients with troublesome asthma to engage with an asthma online health community (OHC): focus group and interview study with stakeholders from East London Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Swansea, April 2023 |
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Effectiveness and cost-effectiveness of A Digital social intervention for people with troublesome astHma prOmoted by primary care Clinicians (AD-HOC). Asthma UK Centre of Applied Research Annual Scientific Meeting (AUKCAR ASM) Leeds, June 2022. |
Dissemination activities
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QMUL Festival of communities – stand ‘Asthma Alert! Who Helps you cope? 11-12 June 2022 |
Awards
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QMUL Public Engagement Award Promoting Research in Social Media and Health Runner up – Involve award |
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2nd best conference poster Award - Karampatakis GD Asthma UK Centre of Applied Research Annual Scientific meeting (AUKCAR ASM), Swansea |
New Collaborations Brought in by the Programme
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Nanjing University: School of Information Management, Nanjing, China. |
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University of Milan Bicocca: Department of Informatics, Milan, Italy |
Other funding
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2025 QMUL Centre for Public Engagement (CPE) small award.
Understanding barriers and preferences in sharing social network data within primary care electronic health records (EHRs): views from PPI members with multiple long-term conditions (MLTCs)
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2022 QMUL Centre for Public Engagement (CPE) small award. Asthma Alert! Who Helps you cope? |
Capacity Building
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Student Selective Component for fourth-year medical students (SSC4): |
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2025 - Zipporah Ejemai,
Dissertation Title: Understanding the Emotional Dimensions of Asthma Care: Patient Perspectives from an online community and Evidence-Based Insights Toward Holistic Support
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2024 - Jie Lin Li, University of Cambridge
Dissertation Title: How engagement with an online forum may affects self-management behaviour of anxiety in people with asthma? Qualitative analysis of a UK asthma OHC
June 2024
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2024 - Jenny Huynh, Barts and The London School of Medicine and Dentistry. QMUL
Dissertation Title: Exploring the Impact of Co-Morbid Depression on Asthma Management and the Therapeutic Potential of Online Health Communities (OHCs): A Qualitative Analysis of a UK Asthma OHC
May 2024
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2023 - Samuel Kimber, University of Cambridge
Dissertation Title: Patients’ and Clinicians’ Views on a Primary Care Digital Social Intervention: a Qualitative, Co-Development Study
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MSc students: |
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2024 - Alessio Pasinato, MSc Data Science, Department of Informatics, University of Milan Bicocca, Milan, Italy
Dissertation Title: Analysis of interaction dynamics between users and superusers in OHCs
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2022 - Emanuela Vaghi, MSc Data Science, Department of Informatics, University of Milan Bicocca, Milan, Italy
Dissertation Title: Content Analysis for Social Good on Health Virtual Communities
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